Category: Uncategorized

  • What if: My Heart Transplant Story

    Hello! I know it’s been a while since I last posted, but I thought I would give an update on what has happened in the last two months.

    Starting on June 23rd, I was evaluated for a heart transplant and then six days later I was then hospitalized. On July 2nd, I was officially listed for my heart transplant and the next day, I was told that they had a heart for me. On July 4th, at 12:00pm I was rolled back into the operating room to receive my heart. I remember laying on my hospital bed with my parents next to me and the nurse’s unhooking me from all the monitors I was on when I then couldn’t breathe. I felt my heart racing (at 160 laying down) and I remember gasping for air. I remember my thoughts disrupting my peace that I had carried for so long:

    What if this is the last time I see my parents?

    What if the last thing I hear is my monitor beeping?

    What if the last thing I taste is the saline being flushed into my IV?

    What if.

    What if…

    What… if…..?

    I couldn’t really tell you what day I was officially awake; they all blur together. Based off of what my parents told me, the first three days I was pretty in-and-out of consciousness. Once the doctors took me off of my heavy pain meds, I remember my family being there everyday up until my discharge day. I remember having physical and occupational therapy once a day everyday. I remember being the youngest on the floor by a couple of decades. I remember how bad my mental health got at this point.

    It’s hard to pinpoint what was exactly causing me to feel the way I was feeling with all the new medications and the symptoms that came with them, but I was depressed. I couldn’t see my little sister due to age limits in the ICU, I missed my dogs, and I missed my bed. I cried nearly every day (if not multiple times in a day) because of it. Just getting up every day was hard physically and mentally. At this point guilt crept into my opened casket.

    I felt guilty for ever accepting the heart. I had only been on the list for two days, I got my heart sooner than most do. I thought someone else deserved it more than me, or that I’m not as sick as others so they need it, or that I didn’t even deserve a second chance, because of the ‘what-ifs’:

    What if this heart fails and it was all for nothing?

    What if I run into major complications?

    What if I’m not strong enough to make it through?

    What if.

    What if…

    What…if…..?

    After overcoming the in-hospital battles, I finally got to go home on July 14th after only being hospitalized for the worst 15 days of my life. I was so happy to finally be leaving and also beyond grateful that I got to go home so soon after my transplant. I was also afraid because I couldn’t go home to the old Emilee, but the new one: She just had her chest cut open and couldn’t lift more than five pounds, she couldn’t raise her arms above her head, she had to take 15 medications everyday just to stay alive, she had to watch everything she did and be extremely careful in her physically fragile state. I was afraid of messing up or accidently lifting myself out of bed and breaking the brace in my chest. Fear was all I felt the first two weeks at home.

    As time went on, things got better as they always do. I learned my new schedule and understood my limitations and boundaries just for the time being. Life was hard and still is as I’m still adjusting to my new lifestyle. But I wouldn’t have it any other way because although it was hard, I get to breathe and see the sun rise again, where my donor won’t experience that again. I’m forever grateful for my donor and their family and the decision they made to donate their loved one’s organs. It truly is a gift ❤

    “Stop being afraid of what could go wrong, and start being excited about what could go right.”- Tony Robbins

  • Life of a Sick Girl

    I was born sick. I’ve never lived a life where I didn’t see a doctor countless time a year or met my family’s deductible by February; and I’ll never live like that.

    Growing up wasn’t easy for me. I was always the last one to finish the race or the only one gasping for air after running to the playground. I continuously pushed myself to hide the fact that I was the “sick girl,” because I have always been more than a doctor diagnosis. I was kind, caring, compassionate, smart, and funny and I thought by saying that my heart functioned differently than the person next to me, I would’ve been judged. It wasn’t until my conditions progressed and I had a major event, where I couldn’t hide it anymore and was almost forced to tell people. I quickly realized that the people that care about me, wouldn’t judge me for something out of my control; they would support me in the best ways possible.

    My friends, my family, and my mentors loved and cared about me even when I told them. Nothing yet everything changed. I felt free from the secret I had kept for 17 years.

    I am the same kind, caring, compassionate, smart, and funny woman, who also has hypertrophic cardiomyopathy and Ebstein’s anomaly; and it’s beautiful. Without being born broken, I wouldn’t be who I am today. So, in a way I’m grateful I was handed the sharp end of the knife, otherwise I wouldn’t be here today, where I’m meant to be.

    Quote of the day!

    “You are exactly where you need to be because if you were supposed to be somewhere else you would be there.” -unknown

    Thank you for reading! 🙂

  • About Me :)

    Hello!

    My name is Emilee Sparks; I am 18 and just recently graduated from high school. I moved to South Carolina from Colorado 2.5 years ago. The beach is one of my favorite places, and as you can probably guess, I also love reading and writing.

    I had a traumatic experience back in November of 2024 where I went into sudden cardiac arrest while walking to class. Due to that and many other underlying issues I will be listed for a heart transplant after my evaluation which is coming up in two weeks. This experience is what drove me into sharing my story and to stop trying to hide the fact that I have two heart conditions and I am unfortunately symptomatic for both. I almost died without getting to share my story, so this is my story. I’ll talk about various things like my medical, mental health, and some of my poems.

    I hope that my words can help or inspire someone else to do the same or if someone is in a similar situation, I hope they know they aren’t alone like I thought I was for the longest time.

    Thank you for reading this and I hope you continue to check back for posts!